CGRD長庚醫學研究資料庫是去辨識化的匿名資料庫,資料源自長庚體系各院區。長庚醫療體系是台灣最大的醫院系統,每年約收治28萬名住院病患,850萬門診病患人次。
2015年體系共發表約1800篇論文,其中有許多是以體系內患者的病歷資料為基礎。關於長庚醫療體系患者的特徵與涵蓋率,卻未曾被驗證過。
本研究使用一組NHIRD百萬歸人檔,Sample Size為1,000,000,研究結果指出長庚資料庫整體涵蓋率為21.2% (門急診),12.4% (住院);個別疾病涵蓋率為27–34% (門急診),14–21% (住院)。
長庚體系患者之疾病嚴重度、盛行率皆較全國母群體更高。筆者認為CGRD相當適合用於研究複雜或多重疾病,重症,與罕見疾病。
Large Taiwanese clinical database under the spotlight
The Chang Gung Research Database (CGRD) is a de-identified database of medical records collected from the Chang Gung Memorial Hospital, the largest hospital system in Taiwan.
With more than 280,000 patients admitted to the hospital system every year, the database is a gem for big data mining and has been used in around 1800 studies. However, the characteristics and coverage of the database with respect to the general population of Taiwan have never been studied before.
Based on their analysis of nearly one million medical records from the CGRD, Tsai et al. [17] report that the severity of co-morbidities and the prevalence of certain diseases were higher in the CGRD than in the Taiwanese National Health Insurance Research Database.
Thus, the CRGD could provide additional statistical power when studying complicated or rare diseases.